Fare i conti con l’America di Trump
di Sergio Fabbrini
Christmas time. For many it is holiday time. We would like to spend a few days in the mountains, we go. For others, the holiday has never really been an option. A family with a disabled child tries to organise a few days out. The first search concerns the accessibility of accommodation. Then transport. Then the distance to the nearest hospital. Then the availability of appropriate services. Each choice requires phone calls, checks, alternative plans, back-up solutions. In the end, the simplest decision is not to leave. Not because theoretically the boy cannot travel. But because organising that holiday is a full-time job. A job that falls entirely on those who take care of him. And which, as is often the case with care work, is neither supported nor facilitated. It is often not even seen. Giving up a holiday is not a detail. It is not a matter of convenience. It is a signal. It indicates the point at which a society for some stops functioning as it should. And we are not talking about moments of emergency, but the ordinariness of life. And it is precisely there, in the ordinariness that becomes a constant emergency, that a profound question of justice is hidden.
Much of modern political philosophy has built its various theories of justice around an implicit image of the human being: autonomous, self-sufficient, capable of cooperating and returning what it has received. This is the anthropology of the social contract. We have spoken about it at length in recent weeks. Cooperation is fair because it produces mutual benefit. But this grammar only works on one condition: that the participants, at least approximately, have a similar and symmetrical capacity to give as well as to receive. Those who do not have this capacity - children, the non-self-sufficient elderly, people with severe disabilities or even just temporary impediments - are considered by contractualism as exceptions, an 'outlier'. A problem to be managed.
Vulnerability and the resulting dependency are treated as a deviation from the norm, a misfortune affecting some. Never as it really is: a constitutive feature of the human condition. Eva Feder Kittay has clearly shown in her Love's Labor. Essays on Women, Equality, and Dependency (Routledge, 1999) that this approach is not only incomplete, but completely distorted. Dependency is not an accident. It is an ordinary condition of existence. We have all been dependent. All of us, if we live long enough, will be again. To design institutions as if autonomy were the norm is to design systems that work well for only part of the population. Discriminatory institutions by construction.
But this is not an individual matter. It is social and political. Addiction, in fact, never concerns only one person. It presupposes a relationship involving at least one other subject: the caregiver. And it is here that traditional justice theory becomes blind. To name this dimension, Kittay introduces the concept of doulia. The term, introduced by anthropologist Dana Raphael, denotes the supportive relationship towards mothers before and after childbirth. The doula is that figure who helps the mother to care for her child. Kittay's analogy is clear: just as a mother cannot care for a newborn child without being supported, in the same way the caregiver who cares for someone else becomes in turn vulnerable precisely by virtue of that caring action which requires not only emotional closeness, but also organisation of time, constant vigilance, anticipation of needs, mediation with institutions, implies giving up work opportunities, time off and a constant consumption of cognitive and emotional energy. It is a job that produces economic and social vulnerability. And this vulnerability is not natural. It is a product of our social organisation.
The doulia perspective proposed by Kittay emphasises the principle that if a society benefits from the work of caregivers, then they must be recognised and supported by society as a whole. But not as an act of benevolence, but as a requirement of justice.