Long Term Care

Alzheimer's, centres in the South dropper and 90% of patients will not have access to the new drugs

In the South, the number of facilities is about four times less than in the North, and in Italy as a whole, for almost a quarter of the specialist centres there are waits of more than three months for the first visit, while the Istituto Superiore di Sanità raises the alarm of inequality

(AdobeStock)

4' min read

Translated by AI
Versione italiana

4' min read

Translated by AI
Versione italiana

A portrait announced by the chronicles and daily experience but which hurts nonetheless: to patients as well as to their families. And which questions a country like Italy, where there are already 1.2 million people with dementia, a number that will inexorably grow as the population ages. The tragedy of the disease is accompanied by the heavy shadow of the inequality of access to facilities for the elderly and to those, specialised, which formally took the place of the old Uva, the Alzheimer Evaluation Units. These are the Centres for Cognitive Disorders and Dementia (Cdcd), which are still a long way from forming an adequate network for taking care of the elderly and, above all, are very poorly staffed.
The first centres for the elderly, from RSAs to day care centres, are concentrated above all in the north and fade in number as one moves towards the south of the country. Where the figure is dramatic, with four times fewer facilities than in the North.

Then there is the huge issue of the new and expensive drugs on the way, capable for the moment of slowing down the spread of symptoms by a few months, but on which, in any case, Italy as a whole is not ready: with the current framework, the risk is that nine out of ten patients will be excluded from the possibility of benefiting from the new therapies - not reimbursed in Italy - that require very accurate protocols for taking charge.

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10% of the elderly

These issues were discussed at the conference 'The Centres for Cognitive Disorders and Dementia and the Integrated Management of Dementia', organised at the Istituto Superiore di Sanità, which has always been a watchdog for the elderly population. "The subject of dementia is fundamental for public health because of its implications, not only clinical," says Iss president Rocco Bellantone. "Suffice it to say that it directly affects about 10% of the Italian population, including people with dementia and Mild-Cognitive Impairment and their families, and has an overall annual cost of 23.6 billion euros, 63% of which is borne by families. These data, together with all the work of the Dementia Observatory, are a useful compass for policy makers in developing strategies to tackle this problem'.

 

The survey

The survey carried out in 2022-2023 by the Iss's Dementia Observatory and presented at the conference was conducted on 3,607 RSAs and 1,084 Day Care Centres. It emerges that in Central Italy there are 1.5 fewer RSAs and Day Care Centres than in the North of the country, while in the South-Islands this value is about 4 times lower than in Northern Italy, for both types of facility.
In detail, the Iss explains that for Day Care Centres the value per macro-area varies from 699 people with dementia per CD in the North, to 1,108 in the Centre and 3,145 in the South-Islands. As far as RSAs are concerned, instead, the ratio is one RSA for every 224 cases of dementia in the North, one for every 332 in the Centre and one for every 884 in the South. Moreover, only 25% of the guests with dementia in a RSA have access to an Alzheimer module/nucleus, just as only 24% of day care centres are defined as Alzheimer.

Missing personnel

The survey conducted for the Alzheimer's and Dementia Fund 2021-2023 showed that 9.1% of the 450 CoDs have only a doctor, 15.1% have only a doctor and a nurse, 24.7% are only open one day a week, 35.3% have neither a psychologist nor a neuropsychologist, 47.1% have a structured psychologist/neuropsychologist, 23.3% have waiting times for the first visit of more than three months, 17.1% do not offer CT/RM directly or in agreement. Moreover, 75 per cent of persons with dementia are not included in a diagnostic therapeutic care pathway (Pdta).

New drugs: 90% of patients excluded

'The imminent launch of the new Alzheimer's drugs will create, as things stand, a further profound inequality in terms of access and maintenance of care,' says Nicola Vanacore, head of the Iss's Dementia Observatory, 'between the 10 per cent of patients who are candidates for treatment, which will require a considerable commitment of human and structural resources, and the remaining 90 per cent of patients who cannot be treated. I hope for adequate funding from the current National Dementia Plan'.

 

Resources in the field

The Alzheimer's and Dementia Fund finances regional projects that enhance healthcare provision and has 15 million euro for 2026.
From the Iss specify that under the Alzheimer's and Dementia Fund 2024-2026, the Iss's Dementia Observatory is working on 8 actions, including the dissemination and implementation of the guideline "Diagnosis and treatment of dementia and Mild Cognitive Impairment" in all Regions and Autonomous Provinces, thus investing in culture and training, the updating of the National Dementia Plan, the definition and implementation of a national training plan for sociomedical professionals and information-training for caregivers involving all patients' family associations and all training referents of the Regions and Autonomous Provinces. Also in the pipeline is the promotion of strategies and programmes for primary and secondary prevention aimed at reducing the number of avoidable cases of dementia, the definition and implementation of a system of national indicators for monitoring the network of services, the definition and implementation of a system of national indicators for monitoring the Pdta dedicated to dementia.

It also looks at the testing of tele-rehabilitation interventions, 'with a particular focus on the development of a publicly owned medical device for remote cognitive stimulation of people with mild cognitive impairment'.

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