The Agenas document

Community Centres: a guide to using them – how citizens can make their voices heard

User participation takes place at several levels: information, consultation, active participation and empowerment

4' min read

Translated by AI
Versione italiana

4' min read

Translated by AI
Versione italiana

Not merely service users in need of support, but individuals called upon to contribute to the design, delivery and even evaluation of services. This is the shift in perspective outlined in the document by Agenas – the Agency for Regional Health Services – on participation and co-production in Community Centres, as highlighted in the update of 11 September 2026, following the final approval of the text on professional multidisciplinarity on 8 September. The new text translates one of the mandatory organisational standards of Ministerial Decree 77 into operational guidelines: community participation and the promotion of co-production in hub-and-spoke centres.

A Community Centre should not, therefore, merely bring together clinics and professionals, but should become a place where the local population helps to define needs, priorities and solutions. According to Agenas, participation takes place at several levels: information, consultation, active participation and empowerment. The extent to which citizens are involved in decision-making varies at each level: citizens can be involved throughout the entire process, from identifying needs to designing services, right through to evaluating the results.

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Level 1: Information

Community centres must explain what services they offer, how to access them, which professionals work there and what support pathways are available. The guidance is to use not only digital tools, but also helpdesks, printed materials, the local press and public meetings. Particular attention should be paid to foreign nationals, older people, those with digital difficulties and vulnerable groups. The new local support service risks being ineffective if citizens do not know what the centre has to offer and how to use it.

Second stage: the consultation

Citizens do not merely receive information; they are listened to. Agenas organises questionnaires, ‘suggestion boards’, permanent round-table discussions, citizens’ juries, town meetings and health forums. The organisation should explain in advance the weight that will be given to the feedback gathered and then report on how opinions and proposals have influenced decisions. This is a step towards ensuring that participation is not reduced to a mere bureaucratic formality.

Third level: active participation and co-production

Patients, carers, organisations and communities can be involved in jointly setting priorities, jointly designing services and care pathways, jointly delivering certain activities, and jointly evaluating outcomes. The document suggests that citizens and organisations should be involved from the very outset of the Community Centre’s establishment in identifying local needs and designing services. The patient’s ‘experiential’ knowledge is thus combined with the technical expertise of professionals. This collaboration can also extend to the management of certain activities: reception and guidance desks run in partnership with organisations, transport to healthcare facilities, therapeutic education groups and support for adherence to treatment, as well as initiatives involving patient experts and community support workers. Agenas also highlights ‘social prescription’, that is, connecting individuals with social and community resources that contribute to their wellbeing.

Level 4: Co-assessment

The document proposes citizens’ round-table discussions at the Community Centres to assess whether services meet the needs of the local area and to discuss the standards set out in the Service Charter. PREMs (which measure the patient’s experience of care throughout the care pathway) and PROMs (which measure the health outcomes perceived by the patient following treatment or an intervention), reports of service failings, civic audits and participatory assessments should form the basis for improvement initiatives. Citizens therefore do not merely express a level of satisfaction, but can help to measure quality, accessibility and equity.

Health education

Then there is empowerment: health and digital literacy, the ability to navigate the National Health Service, recognise symptoms, adhere to treatments, use telemedicine and digital tools, and make informed decisions about one’s own health. Initiatives should be developed in collaboration with citizens and targeted in particular at people with chronic conditions, the frail, adolescents, carers, migrants and those most exposed to inequalities.

The risks and how to avoid them

The public consultation also highlighted a number of risks, such as the danger of always involving the same organisations, thereby excluding those who are most vulnerable or less well-organised; of setting up forums that have no real impact; of using language that is difficult to understand; and of fuelling mistrust when it is unclear what decision-making powers are granted to citizens. Among the proposed solutions are criteria for representativeness, ongoing consultation, training for staff and volunteers, cultural mediation, and indicators to measure the quality of participation itself. For the model to work, Agenas suggests a stable structure dedicated to participation, possibly in the form of a committee comprising professionals and civic representatives, trained staff and dedicated resources. The roadmap begins with the training of practitioners and the provision of information to the public, moves on to pilot schemes involving consultation and co-production, and culminates in established procedures that are periodically evaluated.

Following the rush to build and open the Community Centres, Ministerial Decree 77 is now entering its most challenging phase: proving that these places truly belong ‘to the community’. The yardstick will not merely be how many doors are open or how many services are available, but the extent to which citizens are able to familiarise themselves with them, navigate them and help to improve them.

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