Disability

Family caregivers, Italy puts in place a first system of protections and some resources for 7 million people

From the 'prevalent cohabitee' who devotes at least 13 hours a day to the care recipient with strict limits to obtain 400 euro a month to televangelists: the Locatelli bill outlines the identikit and rights of caregivers and introduces skills certification as well as priority access to healthcare and smart working

by Barbara Gobbi

5' min read

Translated by AI
Versione italiana

5' min read

Translated by AI
Versione italiana

The approximately 7 million caregivers estimated by ISTAT who in Italy take care of people in serious and non-self-sufficient conditions had been waiting for this for a long time, so much so that in 2022 our country had been 'condemned' by the UN for violation of the obligations dictated by the International Convention on the Rights of Persons with Disabilities. Now to guarantee the recognition and protection of family caregivers comes the bill approved in the Council of Ministers after two years of work by the 'table' of 50 experts and associations set up by the Minister for Disability Alessandra Locatelli.

A first piece

With the Ddl 'Provisions on the recognition and protection of family caregivers', Locatelli claims both the recognition of rights and (timid) economic support measures and the legal framework aimed at protecting and enhancing the role of caregivers in the family and society. But the minister herself admits that we are still only at a first, albeit important step: 'I cannot say that I am overjoyed, but I am happy about this first step, which is so important for the lives of so many families, whereas up to now nothing had been done,' she said when presenting the measure. 'It is an important law to start with because we have certain resources and a shared norm and we will work on this to improve the conditions and lives of each person. We have asked for urgent procedure for the process, we are counting on a shared path with deputies and senators, some of whom had presented valid proposals over the years that had never seen the light of day'.

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And in the meantime, from the Fish-Italian Federation for the rights of persons with disabilities and families, comes the willingness to confrontation with the institutions and all the subjects involved, "so that the legislative path will lead to a result up to the expectations and rights of persons with disabilities and their families". "For the first time in our country, the issue of the family caregiver is being tackled in an organic way, overcoming a long phase characterised by announcements and initiatives lacking structural answers," says president Vincenzo Falabella.

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The cornerstone of the law is the 'cohabiting and prevalent family caregiver who is with the person being cared for 24 hours a day', Locatelli explained. Hence the introduction of a system of four differentiated protections, graded on the basis of care commitment and cohabitation, to which the same number of profiles correspond. They will also serve to regulate access to the benefits provided by the law, with economic recognition - a maximum of 400 euro a month tax-free, paid every three months to those with an Isee up to 15,000 euro - reserved only for the most demanding role with at least 91 hours a week - as many as 13 hours a day - dedicated to a dependent family member. The other three profiles identify minor commitments up to care between 10 and 29 hours per week and only one of them contemplates non-cohabiting caregivers with a care commitment of at least 30 hours per week.

Resources in the field

The resources - which are a knot if one only considers the number of potential beneficiaries - come from the last Budget Law: 257 million euro a year for 2026-2028, to which, however, admitted caregivers will only have access from 2027. For this year 1.15 million will go for the construction by next September of the Inps platform that will collect the requests for recognition of the role of caregiver, necessary to identify the number of beneficiaries of both economic contributions and other facilities.

L’identikit

The bill outlines the new discipline in sixteen articles, starting with the identikit of the caregiver and identifying a double criterion: on the one hand the relationship of kinship and affinity, and on the other the characteristics of the person being cared for. So a caregiver is anyone who 'assists and takes care of a child or another relative within the second degree, a spouse, the other party to the civil union or a de facto cohabiting partner, or even a relative within the second degree, or even in specific cases covered by 'law 104', a relative within the third degree'. While recipients are disabled persons (law 104/1992), holders of accompaniment allowance and non-self-sufficient persons. They will be the ones, by virtue of the principle of self-determination, to identify their caregiver, expressing themselves in any form and with any device that allows them to manifest their will. In the case of children, caregivers may be both parents, thus alternating in the role and limiting the risk of burnout.

The bill envisages the participation of the caregiver - not a mere provider of care, therefore, but an actor in the system of protection of the frail person - in all the processes of assessment, planning and implementation of care and assistance paths: he or she will be part of the multidimensional assessment unit for the definition of the 'life project' envisaged by the disability reform, as well as in the multidimensional assessment of the non-self-sufficient elderly person and in the elaboration of the individual care plan (Pai) and the care and assistance budget.

Non-economic protections

Against an economic contribution that Minister Locatelli herself described as 'low' and hoped that the parliamentary procedure could raise it, the new law introduces a series of other protections. Family carers will be able, for example, to request that the Via or Pai plan include, among other possibilities, replacement within 24 hours in emergencies, but also psychological support, medical examinations and teleconsultations, priority access or timely scheduling of health interventions. And again, the possibility of access to the patient's health data, always with prior consent. The care work then becomes spendable for a possible re-entry into the labour market: it will be possible to obtain recognition of the skills acquired in care for the qualification of socio-healthcare worker or similar roles, provided that they can be certified by the reference organisations and regions. It is also possible for those who remain at work to change their working hours for care activities and use smart working, as well as to receive a gift of holidays and solidarity leave from colleagues and to activate anti-discrimination protection for conduct suffered as a result of care activities.

What about young carers? For them the law envisages - if they are students - the recognition of caring activities as training credit and in school-work training courses. In the case of university students, they are exempt from paying university tuition fees.

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