World Day

Fibromyalgia, depression for 43% of patients: 'Fibra' study for sufferers and carers launched

The disease, which affects up to 4% of the population, mostly women, also affects the psychological and emotional area: the Istituto Superiore di Sanità with Fondazione Isal opens a new research project dedicated to those who have already been diagnosed

by Health Editor

 (Adobe Stock)

2' min read

Translated by AI
Versione italiana

2' min read

Translated by AI
Versione italiana

Widespread pain, persistent fatigue and sleep disturbances that impair quality of life. These are some of the main symptoms of fibromyalgia, a chronic condition that affects 2 to 4% of the population in Western countries, especially women.

In addition to physical symptoms, many people also face emotional and psychological difficulties related to the condition that the Iss wants to explore in a new study, the Fibra study, which kicks off on the occasion of World Fibromyalgia Day on 12 May.

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The Fibra Studio

Fibra is promoted by the Reference Centre for Behavioural Sciences and Mental Health of the Istituto Superiore di Sanità in cooperation with the National Centre for Disease Prevention and Health Promotion and the Isal Foundation - Ente del Terzo Settore.

The invitation to participate is aimed at people diagnosed with fibromyalgia and their families, to gather their experience and better understand the relationship between this condition and psychological wellbeing, the difficulties in the treatment pathway, and what hinders and what instead favours the treatment of anxiety and depression.

It is estimated that about 43% of people with fibromyalgia present depressive symptoms and about 30% anxiety disorders of clinical interest. The presence of depression and anxiety is associated with reduced function, increased pain intensity and, consequently, a deteriorated quality of life.

How to apply

To participate in the study or receive more information, please send an e-mail to studiofibra@iss.it.

People with a diagnosis of fibromyalgia (who will first answer a brief telephone interview with an Isal Foundation expert to verify the inclusion criteria for the study) can take part in the research. Family members will also take part in separate discussion groups.

The first in-person focus group is scheduled to take place in Rome, on the morning of 19 June 2026, at the headquarters of the Istituto Superiore di Sanità.

Other focus groups will follow in other cities in Italia.

The meetings will be mainly face-to-face, in some cases they may be organised online.

'Sharing one's experience,' emphasises the project's scientific head Virgilia Toccaceli, of the Iss Reference Centre for Behavioural Sciences and Mental Health, 'will help research to better understand the needs of people with fibromyalgia in order to provide useful indications for the development of more effective and accessible services and treatment paths.

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