Multiple Myeloma Awareness Month. Ail launches 'let's get comfortable' video talk
March is Multiple Myeloma Awareness Month and AIL - Associazione Italiana contro Leucemie, Linfomi e Mieloma renews its commitment to supporting haematological patients with a new way of telling the story of the disease: the video talk "MettiaMoci Comodi", a space for dialogue and discussion dedicated to the osteoarticular consequences of myeloma and the importance of a multidisciplinary person-centred approach.
In Italia, multiple myeloma affects about 6,000 people each year and is the second most common blood cancer after lymphomas. Despite its epidemiological importance, it still remains a little-known disease. This is why, from 2021, AIL has chosen to dedicate its information services to this neoplasm during the month of March, with the aim of increasing awareness, information and closeness to people living with the disease.
Overcoming the traditional format based on articles and video interviews guided by a clinical voice, this year AIL is introducing a new narrative language. "MettiaMoci Comodi" recalls an informal and welcoming context: an open discussion space where the "comfort" is not only physical (the seats on which the guests talk) but also emotional.
Feeling comfortable talking about multiple myeloma, without filters, means creating the conditions for a more sincere, concrete and participatory communication. A language that evolves, maintaining firmly the historical objectives of awareness, information and empowerment, integrating scientific authority and personal experience for a narrative that is more human and close to the daily reality of patients.
The topic of the talk: osteoarticular consequences in myeloma
In multiple myeloma, bone damage is one of the most relevant and impactful aspects of the disease. Often the first signs manifest themselves as persistent pain, fractures or difficulty in movement, with immediate repercussions on autonomy and quality of life.
Tackling bone damage means caring for the whole person, not just the pathology. It means valuing mobility, independence, and the ability to continue to feel active.
In the course of the talk, several key aspects will be explored:
- Why myeloma affects the bones;
- How to manage fractures and loss of autonomy;
- The importance of a multidisciplinary approach;
- The role of movement, even during treatment, when possible;
- Lifestyles and nutrition as an integral part of the treatment pathway.
The key message is clear: Bone damage in myeloma can be managed through a multidisciplinary approach and with the active and conscious involvement of the patient.
Leading the discussion will be Andrea Grignolio, popularizer and Associate Professor of History of Medicine and Bioethics at the University Vita-Salute San Raffaele. Also taking part in the debate will be:
- Stefano Luconi, myeloma patient, who will bring his own direct experience;
- Nicola Giuliani, Full Professor of Haematology at the University of Parma;
- Antonio Robecchi Majnardi, Director of the U. O. Rehabilitation Medicine.O. of Rehabilitation Medicine at the Istituto Auxologico Italiano.
Click here to watch the video talk.
The comparison between different competencies: haematology, rehabilitation and bioethics, together with the direct experience of the patient, builds an integrated vision in which the person is not simply a spectator of the treatment pathway but a conscious protagonist.
With "MettiaMoci Comodi", AIL confirms its commitment to promoting a culture of care that focuses on the quality of life, listening and the active participation of people with multiple myeloma.
