Disability

Cultural accessibility, with "Museo per tutti" Fai expands the inclusion of Italian heritage

The IQVIA survey captures organisational and information barriers that limit the cultural participation of people with intellectual disabilities.

by Nicoletta Labarile

5' min read

Translated by AI
Versione italiana

5' min read

Translated by AI
Versione italiana

Full participation in cultural life for people with disabilities is not a concession. But a right enshrined in Article 30 of the UN Convention on the Rights of Persons with Disabilities. Despite this, in Italy, the historical, artistic and landscape heritage remains protected.

The survey conducted by IQVIA on the topic, on the occasion of the International Day of People with Disabilities, clearly portrays the picture by involving 1,200 people from the general population, carers and professionals who assist people with intellectual disabilities. During a cultural visit, 32% of caregivers report experiencing negative feelings, related to discomfort, loneliness, lack of adequate explanations and fatigue. A perception that limits the right to full participation: more than half of carers (55%) and caregivers (57%) state that they never or almost never go to exhibitions and museums. Reasons differ: for the general public, lack of time, cost and logistical difficulties prevail. While caregivers and operators cite mainly organisational complexity (46% and 47%) and lack of information suitable for people with intellectual disabilities (25% and 12%).

Loading...

"We have a duty to design together with people, listen to their needs and make every visit experience possible, inclusive and truly welcoming," explains Carlo Riva, director of services at L'abilità onlus and creator of the 'Museum for All' project. The initiative, developed with the support of Viatris - a global company operating in the field of health -, aims to encourage the social participation of people with intellectual disabilities, facilitating their access to the world of museums and culture: a goal carried out together with Fai - Fondo per l'Ambiente Italiano ETS which, from 2016 to date, has included 16 properties in the 'Museum for All' network. "Our goal is to make the enjoyment of Fai properties as easy and complete as possible for everyone," emphasises Davide Usai, Fai general director, "This approach continues to guide our daily work.

Guaranteeing "full participation in cultural life"

From the north to the south of Italy, for each of the 16 Fai properties that are part of the "Museum for All" project, it is possible to download from the site special guides in simplified language - suitable for adults as well as children and young people - that are constantly updated thanks to an important multidisciplinary team work: these texts are written in Easy to Read language and in Caa (Alternative Augmentative Communication) symbols of Arasaac (Aragonese Centre for Augmentative and Alternative Communication) enriched with photographs, illustrations and maps.

Concrete tools that make the visit an inclusive and pleasant experience, allowing guests and their caregivers - parents, teachers, carers - to familiarise themselves with the places by learning their history, characteristics and curiosities in an engaging way. A right that is not always guaranteed today: according to the data collected in the IQVIA survey, for 79% of caregivers and 75% of operators, culture is the area in which families and persons with intellectual disabilities receive the least support. In addition to facilitating communication, with the development of special tools capable of removing the cognitive barriers that can hinder it, Museo per tutti brings to Fai places specific visit itineraries - to be carried out independently or with staff, individually or in small groups - designed with an inclusive perspective, with the idea that the skills of each person can be enhanced in a cooperative learning context.

Which Fai goods are included in the network

Design, listen, include: the multidimensional aspect of the initiative comes from the synergy of those who carry it out. "Access is fundamental to our mission of enabling people around the world to live healthier lives at every stage," underlines Fabio Torriglia, country manager of Viatris Italy. "We contribute to the creation of healthy and inclusive communities, where everyone has access to the same opportunities. Thanks to the joint commitment, today there are accessible Fai properties all over Italy: villa Necchi Campiglio in Milan; villa and Panza collection in Varese; Masino castle and park in Caravino (Turin); Olivetti shop in Venice; villa dei Vescovi in Luvigliano di Torreglia (Padua), Campatelli tower and house in San Gimignano (Siena); Villa Gregoriana park in Tivoli (Rome); Saint Francis forest in Assisi (Perugia); casa Noha in Matera, Santa Maria di Cerrate abbey in Lecce, Kolymbethra garden in Agrigento and palazzo Moroni in Bergamo. Four other properties have been added in the last year: Conti Vecchi saltworks in Assemini (Cagliari); the vegetable garden on the hill of the Infinito in Recanati (Macerata); Giganti della Sila and Casino Mollo in Spezzano della Sila (Cosenza); Villa Rezzola in Lerici (La Spezia).

Intellectual disabilities, 54% of the population do not know about them

Dedicated materials, staff and visitor routes - such as those already implemented in the 16 Fai properties - can help to break down the barriers that still hinder real inclusion: a priority for caregivers and operators who, in the IQVIA survey, consider access to culture fundamental for the growth of people with intellectual disabilities and clearly indicate the actions to be taken to make cultural places more and more inclusive and accessible. Staff training is one of the priority dimensions in which caregivers and operators ask to invest, together with the presence of facilitated information material and the creation of dedicated pathways.

Faced with a limited knowledge of intellectual disabilities - 54% of the population declares that they are not aware of them - projects aimed at inclusion and raising awareness of this type of disability acquire further importance: "When we talk about intellectual disability we are referring to a condition that affects the ability to understand complex information, to orient oneself in new contexts, to communicate needs and emotions. It is not a rare frailty, but a reality that involves many families and that, as the survey shows, more than half of the interviewees still do not know about,' explains Carlo Riva. 'This lack of awareness generates concrete obstacles: caregivers and operators tell of visits that are often tiring, lonely, lacking adequate tools. Yet, access to places of beauty and knowledge is essential for a full life for all'.

Cultural heritage, "little or not accessible" for over 70% of caregivers

To include means first of all to know: Museum for All responds to concrete needs and priorities, starting from what emerged in the IQVIA survey. Taking into consideration the fundamental areas for well-being and quality of life - education, professional development, recreational, sporting, cultural and relational activities - the survey shows considerable differences in the perceptions of their importance among the different populations surveyed.

For the general population, education is the most relevant area for well-being (68%), followed by professional development (57%): only 31% consider cultural activities such as visiting exhibitions and museums to be central to a full and satisfying life. The figure changes considerably when the same question is put to carers and caregivers. Although they consider training and work to be fundamental, they also attach great value to cultural activities, with a figure double that of the general population (67% and 70% respectively). The importance of artistic and cultural heritage is recognised by all, but with different intensity: 85% of the general population considers it useful for personal well-being, but only 38% consider it very important. The gap widens when looking at its usability: if for 23% of the general population the heritage is little or not at all accessible, the share rises to 71% among carers and 74% among operators, who experience the difficulties of inclusion more closely. "The results of the research offer useful indications to better understand people's needs," says Fai general director Davide Usai, according to whom it is necessary to continue working to "guide the definition of materials, communication tools and the organisation of visits in an increasingly conscious manner". The numbers, recounting the everyday life of caregivers and operators, guide the action: necessary so that, as the UN Convention states, "the full participation of people in cultural life" can become a right that is concretely guaranteed and accessible to all.

Copyright reserved ©

Brand connect

Loading...

Newsletter

Notizie e approfondimenti sugli avvenimenti politici, economici e finanziari.

Iscriviti