Gender transition: in Italia, access still depends on where you live
There are highly specialised centres across the country offering gender affirmation programmes, but according to the ISS, there is no structured national network
by Ilaria Potenza
For a transgender person who decides today to embark on a journey of gender affirmation in Italia, the first obstacle may be geographical rather than clinical. In fact, within our National Health Service, there is no structured network of services dedicated to this particular clinical issue. Instead, there are centres that have been set up on the initiative of individual multidisciplinary teams, which are unevenly distributed across the country and characterised by different organisational structures.
In recent years, demand for patient care has grown, whilst public provision continues to be concentrated in a limited number of specialist facilities equipped to accommodate them. This is evident from the survey of centres carried out by the Italian National Institute of Health (ISS), which outlines the profile of the main facilities currently in operation. These include Careggi in Florence, Cidigem in Turin, Sapienza and the Policlinico Gemelli in Rome, as well as university and hospital facilities in Padua, Bologna and Bari. These are units which, over time, have built up multidisciplinary teams capable of integrating expertise in endocrinology, psychology, psychiatry, gynaecology, urology and surgery, in accordance with clinical standards now recognised internationally.
The care pathway
Specifically, the initial phase of patient care is generally devoted to an assessment designed to identify patients’ healthcare needs and stabilise their treatment pathway. This is followed by an endocrinological assessment, which enables the initiation of affirming hormone therapy where appropriate, with regular monitoring of metabolic, hormonal and cardiovascular parameters. In some cases, the pathway continues with surgical procedures, which may involve the chest or genital organs. However, the geographical distribution of these services is not uniform. Data from the ISS show that some centres provide comprehensive multidisciplinary care, whilst others offer only individual specialist services or targeted consultations. Furthermore, in many parts of the country – particularly outside the main university centres – access to these care pathways requires significant travel, fuelling patterns of healthcare mobility that rarely feature in official statistics but which represent a structural aspect of the experience for many patients.
The differences become particularly evident when looking at waiting times for services. The data published in the profiles of the centres surveyed by the ISS show considerable variation even at the initial stage of patient intake. At the Policlinico Gemelli in Rome, access to psychological and psychotherapeutic services is reported to take around fifteen days, whilst endocrinology consultations take an average of one month. At the San Raffaele Hospital in Milan, reported waiting times range from fifteen to thirty days for the main multidisciplinary assessments. The ‘6ComeSei’ centre at Sapienza University of Rome indicates a wait of around twenty-eight days to begin psychological treatment. In other settings, however, waiting times are significantly longer. At Careggi, one of the country’s leading centres, the wait for psychological care can take up to five months, whilst those for endocrinology and psychiatry are around two months, and some genetic consultations can even take three months to be provided.
The route through Italia
This variability is not limited to waiting lists. The composition of the teams, the level of integration between the various professional disciplines, and the ways in which patients are supported throughout their care journey also vary. In the best-organised centres, patient care is delivered through a well-established multidisciplinary approach involving psychologists, psychotherapists, endocrinologists, geneticists, gynaecologists, urologists, sexologists and, where necessary, specialists in reproductive medicine. In other settings, the care pathway is more fragmented and requires the involvement of different services that are not always coordinated with one another. This organisational difference can affect not only the time taken, but also the continuity of care and the ability to support the patient through the various stages of their clinical journey.
